Cure EB - Believe


Team Fundraising Goal: $5,000.00

Total Number of Gifts: 25
Total Value of Gifts: $31,100.61

Recent Donors

Joe and Denise Duffy

Cafiso Family-In honor of Melina Spinazola

Cynthia Dustin

CURE EB ~ Believe Gala 2014 in honor of Melina

CURE EB ~ Believe Gala 2014 in honor of Melina

CURE EB ~ Believe Gala 2014 in honor of Melina

GALIATSATOS FAMILY

Messer Family

The Bouchard Family

Dan Sweeney

Full Donor List Opens new window.Full Donor List

....

Our beautiful daughter Melina, (DOB 1/25/10), was born with EB Simplex, presumed Dowling Meara. Our lives have been changed forever!
She is the STRONGEST person I know - and inspires me every day! She is a happy, funny, caring and GORGEOUS little girl. We are so blessed to have her in our lives
Melina has a mild form of EB Simplex, (meaning her blisters are not widespread or internal), with serious wounds, (daily), on different parts of her body. She blisters mostly on her feet, toes and ankles, and occasionally on her hands, face, elbows, knees, thighs, back, diaper area, neck, mouth and tongue. As part of wound care, we lance her blisters with a sterile needle and apply pressure to remove the fluid within the blister. This is an awful process for her, and for us! We must constantly take measures to prevent bacteria from colonizing in her wounds to prevent infections.
In spite of the pain and frustration of EB, she remains a happy and well adjusted little girl! EB is part of her, but it does not define her!
There is NO CURE FOR EB.
There is only prevention of blisters and daily wound care.

Pioneering Unique Cures for Kids (PUCK) invests in bold research that leads to life-saving treatments for children who suffer from Epidermolysis Bullosa. We want to help raise money for this important cause, we want to find a cure.
Please join us in our fight to find a cure!

AWARENESS - FUNDING - RESEARCH - CURE!
Thank you for your support!

Guest Book

If you would like, you can add your name and a short message to our Guest Book. Thank you.

Sign the Guest Book

Records 1 - 25 of 150

Vanita
Thu, Dec 07, 2017
I actually consider your web site was quite worthwhile to actually peruse. If you dive further into this subject in later weblog writings, that would be wonderful. In truth, you could proceed into higher analysis and concentrate on each sub-topic. It's incredible how different it is when an author and thinker considers a topic in a well explored and impartial manner. My own area of interest is definitely wellness areas, progamming and artificial intelligence, making electronic music, yoga exercise and meditation, and vegan raw foods and cooked ones as well. I understand many judge severely when I state that I'm vegan, which can be a boring reponse. For me, it's about being kind, and eating what works for me, personally. You can't ascertain my ideas or anything else by my food choices. That's ridiculous!
my blog post :: mobile massage prices ( %url )

Tamara
Thu, Oct 05, 2017
Wow, lovely site. Thnx ...
my webpage - Colin ( %url )

Naomi Pippin
Sun, Aug 06, 2017
Your data is amazingly fascinating.
Here is my webpage ... rechnung schreiben ( %url )

Liza
Wed, Aug 02, 2017
You're a really practical website; couldn't make it without ya!
Review my page; application development Bangkok ( %url )

Franchesca
Sat, Jul 29, 2017
Many thanks! This is definitely an astonishing site!
Also visit my page :: warszawa optyk ( %url )

Rickey Meisel
Tue, Jul 25, 2017
Great internet site! It looks very expert! Keep up the helpful job!
my website - sua chua o to tai nha ( %url )

Mackenzie Whelan
Sat, Jul 22, 2017
Wow....such a important website.
Here is my blog: keunggulan trading emas ( %url )

Cherie Power
Thu, Jul 20, 2017
Wow cuz this is excellent work! Congrats and keep it up.
my web site; active ingredient in viagra ( %url )

Leonora
Thu, Jul 20, 2017
Thanks a lot! It is definitely an great web page!
Visit my web blog ... viagra directions ( %url )

Preston Burt
Fri, Jul 14, 2017
Hello! Quick question that's totally off topic. Do you know how to make your site mobile friendly? My blog looks weird when browsing from my iphone 4. I'm trying to find a template or plugin that might be able to resolve this problem. If you have any recommendations, please share. Appreciate it!
Feel free to visit my blog post pandora Bracelet leather double ( %url )

Madge
Wed, Jan 18, 2017
Surprisingly individual friendly website. Huge info readily available on couple of clicks.
Take a look at my blog; minecraft ( %url )

Harry
Tue, Jan 17, 2017
Thanks a bunch! This is an great web page!
My site ... kroger ( %url )

Jerold
Sat, Jan 14, 2017
You have got possibly the best websites.
My homepage ... minecraft ( %url )

Eugene
Tue, Jan 10, 2017
Thanks with regard to delivering like superior posting.
My website: gamefly ( %url )

Isabel
Mon, Jan 09, 2017
Fantastic Webpage, Keep up the wonderful job. thnx.
My site: kroger ( %url )

Sharyl Racine
Fri, Jan 06, 2017
Thanks, this site is extremely handy.
Here is my homepage - free dating sites no fees ( %url )

Alannah
Fri, Jan 06, 2017
Wow because this is very great work! Congrats and keep it up.
my web-site ... kroger ( %url )

Kieran Bolick
Fri, Jan 06, 2017
Sustain the great work and producing in the crowd!
my homepage free dating sites no fees ( %url )

Linnie Forsythe
Wed, Jan 04, 2017
Hiya, excellent site you've got at this time there.
Here is my website ... quest bars ( %url )

Kara
Wed, Jan 04, 2017
Many thanks, this site is extremely practical.
Also visit my weblog: tinder ( %url )

Antoine
Tue, Jan 03, 2017
I benefit from browsing your website. Appreciate it!
my website; Laguna Hills California Dating Sites ( %url )

Lucio
Tue, Jan 03, 2017
Maintain the excellent job !! Lovin' it!
My web page: plenty of fish dating site of free dating ( %url )

Sergio Grimes
Mon, Jan 02, 2017
You're an extremely useful web site; couldn't make it without ya!
My web-site: Online dating ( %url )

Jonah Haber
Mon, Jan 02, 2017
So beneficial, look frontward to visiting again.
my website - Dating Irvine California ( %url )

Bobbie
Mon, Jan 02, 2017
You're a really practical website; could not make it without ya!
Also visit my blog - online dating ( %url )

Records 1 - 25 of 150


If you think this page contains objectionable content, please inform the system administrator.