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Cure EB - Believe


Team Fundraising Goal: $5,000.00

Total Number of Gifts: 25
Total Value of Gifts: $31,100.61

Recent Donors

Joe and Denise Duffy

Cafiso Family-In honor of Melina Spinazola

Cynthia Dustin

CURE EB ~ Believe Gala 2014 in honor of Melina

CURE EB ~ Believe Gala 2014 in honor of Melina

CURE EB ~ Believe Gala 2014 in honor of Melina

GALIATSATOS FAMILY

Messer Family

The Bouchard Family

Dan Sweeney

Full Donor List Opens new window.Full Donor List

....

Our beautiful daughter Melina, (DOB 1/25/10), was born with EB Simplex, presumed Dowling Meara. Our lives have been changed forever!
She is the STRONGEST person I know - and inspires me every day! She is a happy, funny, caring and GORGEOUS little girl. We are so blessed to have her in our lives
Melina has a mild form of EB Simplex, (meaning her blisters are not widespread or internal), with serious wounds, (daily), on different parts of her body. She blisters mostly on her feet, toes and ankles, and occasionally on her hands, face, elbows, knees, thighs, back, diaper area, neck, mouth and tongue. As part of wound care, we lance her blisters with a sterile needle and apply pressure to remove the fluid within the blister. This is an awful process for her, and for us! We must constantly take measures to prevent bacteria from colonizing in her wounds to prevent infections.
In spite of the pain and frustration of EB, she remains a happy and well adjusted little girl! EB is part of her, but it does not define her!
There is NO CURE FOR EB.
There is only prevention of blisters and daily wound care.

Pioneering Unique Cures for Kids (PUCK) invests in bold research that leads to life-saving treatments for children who suffer from Epidermolysis Bullosa. We want to help raise money for this important cause, we want to find a cure.
Please join us in our fight to find a cure!

AWARENESS - FUNDING - RESEARCH - CURE!
Thank you for your support!

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